Author: Ophelia Benson

Another excellent piece about HIV/AIDS denial.

On Science-Based Medicine, we strive to apply the light of science and reason on all manner of unscientific belief systems about medicine. For the most part, but by no means exclusively, we have concentrated on so-called “complementary and alternative medicine” (CAM) because there is an active movement to infiltrate faith-based, rather than science-based, modalities into “conventional” medicine. Indeed, such efforts are well-financed, both by public and private organizations, and are alarmingly successful at insinuating postmodernist and pseudoscientific beliefs into academia to form an unholy new monster that has been termed by some as “quackademic medicine.”

So science is under heavy suspicion while CAM is given the revolutionary salute. Yee-ha.

However, one pseudoscientific belief system about medicine that we at SBM have perhaps not dealt with as much as we should is the belief that, contrary to the overwhelming scientific consensus built up over 25 years, the Human Immunodeficiency Virus (HIV) does not cause Acquired Immune Deficiency Syndrome (AIDS)…Before I go on to do a case study of the tragic price of HIV/AIDS denialism, perhaps it is worthwhile to take a moment to discuss just what HIV/AIDS denialism is. It is not “skepticism” or “rethinking” any more than creationism is a “rethinking” or “skepticism” of evolution, although denialists like to try to claim the mantle of those labels. Seth Kalichman, author of the book Denying AIDS: Conspiracy Theories, Pseudoscience, and Human Tragedy has written a good primer of the phenomenon…

Yes and he’s going to write about it for B&W. Put that on your calendars.

Indeed, denialism, specifically the denial of scientific medicine, tends to be at the heart of the quackademic medicine movement, just as the denial of evolution is at the heart of the anti-evolution movement known as “intelligent design” creationism. It is a more general phenomenon that involves a dogged clinging to pseudoscientific or pseudohistorical beliefs (creationists and antivaccine advocates are a good example of the former; 9/11 Truthers and Holocaust deniers are a good example of the latter) and the use of logical fallacies and conspiracy theories to bolster their world view.

Read the whole piece; it’s long and thorough and full of horrors, and impressive.

It’s good to question conventional wisdom, except when it isn’t. Conventional wisdom holds that a bridge designed by engineers and built by reputable builders is safer to drive across than one designed by shamans and built by hairdressers. Questioning that conventional wisdom is not really all that productive, and if anyone listens to the questioning, it’s downright lethal.

So with Christine Maggiore.

Until the end, Christine Maggiore remained defiant.On national television and in a blistering book, she denounced research showing that HIV causes AIDS. She refused to take medications to treat her own virus. She gave birth to two children and breast fed them, denying any risk to their health. And when her 3-year-old child, Eliza Jane, died of what the coroner determined to be AIDS-related pneumonia, she protested the findings and sued the county.

That’s the risky kind of questioning conventional wisdom – and it risks other people as well as oneself. That’s why Prince Charles makes me angry when he indulges his passion for denouncing non-alternative medicine, and it’s why Juliet Stevenson made me angry when she used her celebrity to denounce the conventional wisdom about the MMR vaccine and autism, and it’s why Christine Maggiore makes me angry even though she’s now dead. It makes me angry that she breast-fed her children and it makes me angry that she went on television to denounce research showing that HIV causes AIDS. People shouldn’t do that. People shouldn’t take on life and death medical issues when they have no training or expertise in the subject. People shouldn’t trust their own judgment that completely.

For years, the South African government joined with Maggiore in denying that HIV is responsible for AIDS and resisting antiretroviral treatment. According to a new analysis by a group of Harvard public health researchers, 330,000 people died as a consequence of the government’s denial and 35,000 babies were born with the disease.

It’s not a subject for hobbyists or cranks or princes or actors. Children must never play with matches.

Norm points out, as Ian MacDougall did in comments, that I said too much when I said I didn’t think we need empirical evidence to warrant thinking that telling children that people suffer torment in hell forever is harmful and bad. He points out that extrapolating from experience is itself a form of evidence – ‘The experience we have contains various forms of evidence.’ Well yes, and if that is included in what is meant by empirical evidence, then I do think we need it, but I was making the (usual? common?) distinction between subjective evidence about first person experience and intersubjective evidence about the world outside first person experience.

Part of my point was that for empirical questions about the real world, personal experience is not considered evidence (except by some theists). My claim was that for questions about what it is or is not cruel to do or say to people, personal experience can be considered evidence because experience is what it is about; that extrapolation from subjective reactions is reasonable there while it is not reasonable when discussing, say, ‘alternative’ medicine.

I’m not sure about this part:

[I]n principle we have to allow for the possibility that new evidence might show – though I don’t, myself, believe this is likely – that the beneficial effects on children of hell-talk outweigh the harmful ones. Could be, you know, that it toughens kids up and better prepares them to meet the harshness of the world. Unlikely, as I say; yet, although there are claims that don’t depend on empirical evidence – such as that it’s wrong to cause unnecessary suffering – I can’t see that a claim (of fact) about what harms people can do without the support of such evidence.

I balk at that – so now all I have to do is figure out why, and figure out if it’s irrational or if I have a reason. I balk in the sense that I think even if there were robust evidence that hell-talk made children braver than they would otherwise be – it’s still wicked and wrong. Why?

I know – I have it. It’s what NB said in comments. Well done Neil! It’s because hell itself is wicked, so a God that is responsible for it shouldn’t be worshipped. That’s why. Believing in hell and worshipping the God that sends people there puts an appalling principle right at the center of what one believes about the world. Being tougher or braver is no good if you’re someone who endorses sadistic power in that way – so evidence that belief in hell made people tougher or happier wouldn’t touch the basic flaw.

The ‘detox’ question is pretty amusing.

In the majority of cases, producers and retailers contacted by the young scientists were forced to admit that they are renaming mundane things, like cleaning or brushing, as ‘detox’. They range in price from £1-2 for a detox drink to £36.95 for detox bath accessories.

Hahahaha – are there detox rubber duckies? Detox loofahs? Detox washcloths? All priced at ten times the normal rate because of their magical detox powers which the producers and retailers have admitted they don’t actually have?

The dossier shows that, while companies and individuals now use the claim ‘detox’ to promote everything from foot patches to hair straighteners, they are unable to provide reliable evidence or consistent explanations of what the ‘detox’ process is supposed to be.

Foot patches! Hahahahahahaha. ‘What’s that, Joe?’ ‘It’s my detox foot patch.’ ‘Oh yes, of course.’ Hair straighteners! Detox hair straighteners! Hahahahahahaha.

Three years ago they mentioned some other tools:

Our bodies have their own ‘detox’ mechanisms. The gut prevents bacteria and many toxins from entering the body…These processes do not occur more effectively as a result of taking “detox” tablets, wearing “detox” socks, having a “detox” body wrap, eating Nettle Root extract, drinking herbal infusions or “oxygenated” water, following a special “detox” diet…

Detox socks! What are they made of? Cashmere? A mix of cashmere and lamb’s wool? Platinum? Henbane? Whatever it is, I would love to have some darling detox socks. My feet are tragically toxic; I’m always noticing it. I would also love to have a detox body wrap and a whole tank full of ‘oxygenated’ water. Woonchoo?