Tag: Oliver Sacks

  • And you keep half

    And now for something nice, instead. A colleague and friend reminisces about Oliver Sacks.

    A year ago, I lost my best friend, Oliver Sacks. For many years, each week, Oliver and I would cruise north on the West Side bike path at sunrise. Alone, our bicycles a few inches apart, we spoke about everything and anything, but mostly about interesting patients, natural history, and food. His voice was soft, and I struggled to hear his words. But his volume and pedalling cadence always accelerated when the massive TRUMP PLACE buildings appeared to our right. He detested the giant protuberances that unpleasantly punctuated the view from our bike seats, and often cursed them.

    Sensible.

    Instead, he looked forward to passing by the Seventy-ninth Street Boat Basin, which reminded him of his City Island days. There, he had a housekeeper who, once a week, would make a beef stew for him and divide it into seven daily portions. One day, when the portions began to decline in size, Oliver asked, “Did the price of beef go up? I will give you more.” His housekeeper sheepishly admitted to pilfering some stew; she could not afford it for herself. “Then I will give you money for eight pounds instead of four, and you keep half.”

    That makes up for a lot of what I’ve been reading today.

    He would have been crushed by the rise of Donald Trump and the electoral success of Brexit. Intolerance and fear-mongering, he knew, are rudders that steer societies in dangerous directions. Oliver knew life from the other side: a gay man in a straight society; a doctor who cared for people, not patients; a finder of strength among the infirm. His moral compass pointed to tolerance and kindness. Nearly a decade ago, departing the Havana airport after a swim trip, he was asked if he might donate some clothing for those in need. He told me that he handed over his entire suitcase, and left with his satchel of books, a journal, a magnifying glass, and a few odds and ends, because someone probably needed the rest of his things more than he did.

    As he did in Havana, Oliver left us everything he had to give, a treasure of lessons. Care and have empathy for those who are different or less fortunate. Have fun and love often. Find wonder and beauty. Know gratitude.

    Yes; all those things.

  • When Sacks met Grandin

    The Temple Grandin chapter of An Anthropologist on Mars was originally an article in the New Yorker.

    Kanner and Asperger had looked at autism clinically, providing descriptions of such fullness and accuracy that even now, fifty years later, they can hardly be bettered. But it was not until the nineteen-seventies that Beate Hermelin and Neil O’Connor and their colleagues in London, trained in the new discipline of cognitive psychology, focussed on the mental structure of autism in a more systematic way. Their work (and that of Lorna Wing, in particular) suggested that in all autistic individuals there was a core problem, a consistent triad of impairments: impairment of social interaction with others, impairment of verbal and nonverbal communication, and impairment of play and imaginative activities. The appearance of these three together, they felt, was not fortuitous; all were expressive of a single, fundamental developmental disturbance. Autistic people, they felt, had no true concept of, or feeling for, other minds, or even of their own; they had, in the jargon of cognitive psychology, no “theory of mind.” However, this is only one hypothesis among many; no theory, as yet, encompasses the whole range of phenomena to be seen in autism.

    The article was published in December 1993; there’s doubtless been a lot more research on autism in those 22 years.

    He went to meet Grandin at Colorado State University, where she was an assistant professor in the Animal Sciences Department.

    She sat me down with little ceremony, no preliminaries, no social niceties, no small talk about my trip or how I liked Colorado. Her office, crowded with papers, with work done and to do, could have been that of any academic, with photographs of her projects on the wall, and animal knickknacks she had picked up on her travels. She plunged straight into talking of her work, speaking of her early interests in psychology and animal behavior, how they were connected with self-observation and a sense of her own needs as an autistic person, and how this had joined with the visualizing and engineering part of her mind to point her toward the special field she had made her own: the design of farms, feedlots, corrals, slaughterhouses—systems of many sorts for animal management.

    She talked rather relentlessly, and after an hour he had to stop hoping she would offer him coffee and just say he needed some.

    There was no “I’m sorry, I should have offered you some before,” no intermediacy, no social junction. Instead, she immediately took me to a coffeepot that was kept brewing in the secretaries’ office upstairs. She introduced me to the secretaries in a somewhat brusque manner, giving me the feeling, once again, of someone who had learned, roughly, “how to behave” in such situations without having much personal perception of how other people felt—the nuances, the social subtleties involved.

    Later they had dinner, then went for a walk.

    What, I wondered as we walked through the horsetails, of Temple’s cosmogony? How did she respond to myths, or to dramas? How much did they carry meaning for her? I asked her about the Greek myths. She said that she had read many of them as a child, and that she thought of Icarus in particular—how he had flown too near the sun and his wings had melted and he had plummeted to his death. “I understand Nemesis and Hubris,” she said. But the loves of the gods, I ascertained, left her unmoved—and puzzled. It was similar with Shakespeare’s plays. She was bewildered, she said, by Romeo and Juliet (“I never knew what they were up to”), and with “Hamlet” she got lost with the back-and-forth of the play. Though she ascribed these problems to “sequencing difficulties,” they seemed to arise from her failure to empathize with the characters, to follow the intricate play of motive and intention. She said that she could understand “simple, strong, universal” emotions but was stumped by more complex emotions and the games people play. “Much of the time,” she said, “I feel like an anthropologist on Mars.”

    That put her at a disadvantage with people, but over the years she built up what she calls a library of experience, which helps her be less vulnerable to cheaters.

    In one plant she had designed, she said, there had been repeated breakdowns of the machinery, but these occurred only when a particular man, John, was in the room. She “correlated” these incidents and inferred at last that John must be sabotaging the equipment. “I had to learn to be suspicious, I had to learn it cognitively. I could put two and two together, but I couldn’t see the jealous look on his face.” Such incidents have not been uncommon in her life: “It bends some people out of shape that this autistic weirdo can come in and design all the equipment. They want the equipment, but it galls them that they can’t do it themselves, but that Tom”—an engineering colleague—“and I can, that we’ve got hundred-thousand-dollar Sun workstations in our heads.” In her ingenuousness and gullibility, Temple was at first a target for all sorts of tricks and exploitations; this sort of innocence or guilelessness, arising not from moral virtue but from failure to understand dissembling and pretense (“the dirty devices of the world,” in Traherne’s phrase), is almost universal among the autistic.

    Whereas we “normal” people know all about dissembling, as victims and as perps. Do it to them before they do it to you.

    Then he gets to the part about how her autism enables her to understand animals.

    …we drove out to the university’s experimental farm, where Temple does much of her basic field work. I had earlier thought there might be a separation, even a gulf, between the personal—and, so to speak, private—realm of her autism and the public realm of her professional expertise. But it was becoming increasingly clear to me that they were hardly separated at all; for her, the personal and the professional, the inward and the outward, were completely fused.

    “Cattle are disturbed by the same sorts of sounds as autistic people—high-pitched sounds, air hissing, or sudden loud noises; they cannot adapt to these,” Temple told me. “But they are not bothered by low-pitched, rumbling noises. They are disturbed by high visual contrasts, shadows or sudden movements. A light touch will make them pull away, a firm touch calms them. The way I would pull away from being touched is the way a wild cow will pull away—getting me used to being touched is very similar to taming a wild cow.” It was precisely her sense of the common ground (in terms of basic sensations and feelings) between animals and people that allowed her to show such sensitivity to animals, and to insist so forcefully on their humane management.

    One more passage:

    I was struck by the enormous difference, the gulf, between Temple’s immediate, intuitive recognition of animal moods and signs and her extraordinary difficulties understanding human beings, their codes and signals, the way they conducted themselves. One could not say that she was devoid of feeling or had a fundamental lack of sympathy. On the contrary, her sense of animals’ moods and feelings was so strong that these almost took possession of her, overwhelmed her at times. She feels she can have sympathy for what is physical or physiological—for an animal’s pain or terror—but lacks empathy for people’s states of mind and perspectives. When she was younger, she was hardly able to interpret even the simplest expressions of emotion; she learned to “decode” them later, without necessarily feeling them.

    That’s only about halfway through. It’s a magnificent article.

     

  • Three memories of Oliver Sacks

    Wired got some scientists to talk about what Oliver Sacks had meant to them.

    Temple Grandin is the first.

    A few weeks ago, I read an editorial he wrote about the Sabbath. He was originally brought up as an Orthodox Jew, but he decided to go another route, and at the end of the article he writes, “What if A and B and C had been different? What sort of person might I have been? What sort of a life might I have lived?” I just burst into tears in front of the computer reading that. I was crying so much I couldn’t even print it out. I sent him this card just before he died:

    I started crying at the end of the article when you said, “What if A and B and C had been different?” If that had happened our paths probably would have never crossed. You have made a big difference in my life. Your life has been worthwhile, and you helped many people doing things to enlighten and help others to understand the meaning of life.

    If Oliver had decided to stay an Orthodox Jew, his whole life of writing would have never happened. He just gave people so much insight into how the brain works. He just added so much to the literature of how the mind works, especially when the mind is a so-called not normal mind. He really got inside these minds. He got inside my mind.

    As told to Sarah Zhang.

    Daniel J Levitin, a neuroscientist and writer:

    Oliver taught all of us about the power and joy that come from being curious. Oliver was curious about a great many things: absolute pitch, insects, hallucinations, mind-altering experiences (either drug- or injury-induced), perceptual disorders, and theater are just a few. He loved Mozart, 3-D viewscopes, the chemical elements, swimming, and ferns.

    Like Freud, Oliver wrote compelling accounts of his patients. But in Oliver’s hands, these accounts became literature. He created the genre of medical case studies as popular literature, opening the door for the many lay books about the brain that have followed. But no other writer brings his sense of the literary, the comic and the tragic, and his sense of humanity to scientific writing.

    As I saw him do on so many other occasions, he left all my students in that room ten years ago feeling as though they had done him a favor, for he had learned so much that was new to him. Oliver has now left this room and has done all of us an enormous favor by igniting our curiosity and showing us that science and compassion, rationalism and love, can feed one another.

    Bradley Voytek, cognitive scientist:

    The fact that I, a practicing neuroscientist, can openly admit to giving a shit about the human side of neuroscience without fearing “outing” myself as a soft thinker is in no small part due to artistry of Dr. Sacks’ blend of scientific rationality and human empathy. That’s an incredibly difficult line to walk when you’re faced with the existential reality that the very thing that makes us who we are can be changed in some way—for example by neurological trauma or injury—and can therefore change basic aspects of our perception and personality.

    Dr. Sacks, through sheer force of compassion, reminded us, as a scientific field, that the very thing that makes neuroscience most frightening—its ability to expose our humanness as being tied to our physical self—is also why it’s so important for us to pursue it.

     

  • The life of Inky

    Michiko Kakutani on Oliver Sacks:

    Those case studies captured the emotional and metaphysical, as well as physiological, dimensions of his patients’ conditions. While they tracked the costs and isolation these individuals often endured, they also emphasized people’s resilience — their ability to adapt to their “deficits,” enabling them to hold onto a sense of identity and agency. Some even find that their conditions spur them to startling creative achievement.

    I remember reading one of his books in a book group years ago and getting into an intense argument about that ability to adapt to “deficits”…arguing over Temple Grandin, and what she said about experiencing being Temple Grandin. I argued that from her perspective her autism wasn’t a deficit, it was just being Temple Grandin, and it gave her some skills that are particular to autism. The other party argued that what she was missing out on was a real deficit, and that it made her life less good than that of neurotypical people. I still don’t buy that.

    In fact, Dr. Sacks wrote in “An Anthropologist on Mars,” that illnesses and disorders “can play a paradoxical role in bringing out latent powers, developments, evolutions, forms of life that might never be seen or even be imaginable in their absence.” A young woman with a low I.Q. learns to sing arias in more than 30 languages, and a Canadian physician with Tourette’s syndrome learns to perform long, complicated surgical procedures without a single tic or twitch. Some scholars believe, Dr. Sacks once wrote, that Dostoyevsky and van Gogh may have had temporal lobe epilepsy, that Bartok and Wittgenstein may have been autistic, and that Mozart and Samuel Johnson could have had Tourette’s syndrome.

    See that’s why I don’t buy that you have to have all the usual “normal” skills and experiences to have a good life. I think an odd eccentric life can be a good life too, because different people want different things.

    Animated by a self-deprecating sense of humor and set down in limber, pointillist prose, Dr. Sacks’s autobiographical accounts are as candid and searching as his writings about his patients, and they suggest just how rooted his compassion and intuitive understanding — as a doctor and a writer — were in his youthful feelings of fear and dislocation. He tells us about the lasting shock of being evacuated from London as a boy during the war, and being beaten and bullied at boarding school. The rest of his life, he writes, he would have trouble with the three B’s: “bonding, belonging, and believing.”

    And yet he was Oliver Sacks. Who would wish he had been different?

    Dr. Sacks once described himself as a man with an “extreme immoderation in all my passions,” and his books pulsate with his “violent enthusiasms” and endless curiosity: his fascination with ferns, cephalopods, jellyfish, volcanoes, the periodic table — for all the marvels of the natural world; as well as his passion for swimming, chemistry, photography and perhaps most of all, writing. Known as Inky as a child, he began keeping journals at the age of 14. For the shy boy, writing was a way to connect with the world, a way to order his thoughts; and he kept up the habit throughout his life, amassing nearly a thousand journals, while using his books and essays to communicate to readers the romance of science and the creative and creaturely blessings of being alive.

    I identify as an Inky.

    His patients have lost an erudite and compassionate doctor. The world has lost a writer of immense talent and heart, a writer who helped illuminate the wonders, losses and consolations of the human condition.

    We still have his books though.

  • He spent his final days doing what he loved

    The Oliver Sacks Foundation on Facebook:

    Oliver Sacks died early this morning at his home in Greenwich Village, surrounded by his close friends and family. He was 82. He spent his final days doing what he loved—playing the piano, writing to friends, swimming, enjoying smoked salmon, and completing several articles. His final thoughts were of gratitude for a life well lived and the privilege of working with his patients at various hospitals and residences including the Little Sisters of the Poor in the Bronx and in Queens, New York.

    Dr. Sacks was writing to the last. On August 14, he published an essay, “Sabbath,” in the New York Times. Two more articles are to be published this week, one in the New York Review of Books and one in the New Yorker.

    Sacks also left several nearly completed books and a vast archive of correspondence, manuscripts, and journals. Before his death, Sacks established the Oliver Sacks Foundation, a nonprofit organization devoted to increasing understanding of the human brain and mind through the power of narrative nonfiction and case histories.

    The foundation’s goals include making Dr. Sacks’s published and yet-unpublished writings available to the broadest possible audience, preserving and digitizing materials related to his life and work and making them available for scholarly use, working to reduce the stigma of mental and neurological illness, and supporting a humane approach to neurology and psychiatry.

    We at the Sacks office extend our love and sympathies to Dr. Sacks’s partner, Billy Hayes, and we are enormously grateful for the outpouring of love and support from Dr. Sacks’s readers and friends around the world.